CDKL5 Australia
Research
Research into CDKL5 Deficiency Disorder is active and growing. We signpost the key organisations and programs so Australian families can stay informed and get involved.
Australian Foundation for CDKL5 Research (AFCR)
The Australian research foundation funding CDKL5-specific projects. Accepts tax-deductible donations.
International Foundation for CDKL5 Research (IFCR)
The global hub for CDKL5 research coordination. Runs the Connect CDKL5 patient registry.
Murdoch Children's Research Institute
Melbourne-based institute with active epilepsy and neurodevelopmental research programs relevant to CDD.
Telethon Kids Institute
Perth-based institute conducting research into genetic conditions and childhood development.